Newsletter – October 2010

by admin on February 4, 2011

The 5th Annual ‘Smile With Me! 5K Run and 1 Mile Family Walk’ was held on Saturday, May 15th, 2010 . The fundraiser event surpassed the 400 participant mark. Thanks to our sponsors, volunteers, and participants for making this another great year, and in remembering Hannah by supporting CPVT heart arrhythmia research – it’s causes, advancements in diagnostic testing, awareness, and helping treat cases before they become a tragic loss.

We had approximately 425 participants in this year’s walk and run, and generated over $40,000 from donations, corporate sponsorships, and net race proceeds. The ‘Smile With Me’ continues to be a first class event due to the tremendous support and services of our many volunteers, the City of Strongsville police and fire departments, the Walter F. Ehrnfelt Recreation Center staff, and our Race Sponsors and donors of the many product giveaways and awards.

The 6th “Smile With Me” 5K Run and 1 Mile Family Walk is scheduled for 5/14/11. The HWMF Board is already working on needs for next year’s event. We look forward to surpassing the next milestone of 500 participants. If you have any suggestions please let us know (you can drop us a line from our contact page)

The HWMF is continuing it’s reach to families that have needs for CPVT testing where it is suspected that CPVT is present. Current diagnostic testing is very expensive, however, it is hoped that these steps will save lives. Rite-Aid has been a major sponsor of the HWMF and programs that have been developed to help provide diagnostic testing. It is our hope that we can continue to build these programs, in addition to supporting the critical research that is on-going at the Mayo Clinic led by Dr. Michael J. Ackerman, M.D., PhD. Applications for obtaining financial assistance and pointing one to the diagnostic testing services can be found on our web-site.

We have also added a section on the web-site describing some of the testimonials we have received in regard to the information about CPVT and the help that that our efforts have achieved. We also hope to support Dr. Ackerman in his many speaking engagements around the country to talk about CPVT and associated heart arrhythmia developments with diagnosis and treatments.

Sincerely Yours,

Bruce Wernke and the HWMF Board

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