C.A.R.E Cardiac Arrhythmias Support Community

by admin on February 5, 2011

CARE

The Cardiac Arrhythmias Research and Education Foundation maintains a Community Support page where visitors can share their stories and struggles with acquired and heritable heart rhythm disorders.

Both sites provide necessary and helpful information for individuals and families suffering from cardiac arrhythmias such as CPVT, Arrhythmogenic Right Ventricular Dysplasia, Long QT Syndrome, Hypertrophic Cardiomyopathy, and Wolff-Parkinson-White (WPW) Syndrome.

Part of our mission at The Hannah Wernke Memorial Foundation is to help build awareness of hearth arrhythmia disorders, and we’ll continue to provide helpful links on our site to help spread the word.

You can subscribe to our blog via email or RSS by clicking the appropriate link in the right-hand margin. Thank you!

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Newsletter – October 2010

by admin on February 4, 2011

The 5th Annual ‘Smile With Me! 5K Run and 1 Mile Family Walk’ was held on Saturday, May 15th, 2010 . The fundraiser event surpassed the 400 participant mark. Thanks to our sponsors, volunteers, and participants for making this another great year, and in remembering Hannah by supporting CPVT heart arrhythmia research – it’s causes, advancements in diagnostic testing, awareness, and helping treat cases before they become a tragic loss.

We had approximately 425 participants in this year’s walk and run, and generated over $40,000 from donations, corporate sponsorships, and net race proceeds. The ‘Smile With Me’ continues to be a first class event due to the tremendous support and services of our many volunteers, the City of Strongsville police and fire departments, the Walter F. Ehrnfelt Recreation Center staff, and our Race Sponsors and donors of the many product giveaways and awards.

The 6th “Smile With Me” 5K Run and 1 Mile Family Walk is scheduled for 5/14/11. The HWMF Board is already working on needs for next year’s event. We look forward to surpassing the next milestone of 500 participants. If you have any suggestions please let us know (you can drop us a line from our contact page)

The HWMF is continuing it’s reach to families that have needs for CPVT testing where it is suspected that CPVT is present. Current diagnostic testing is very expensive, however, it is hoped that these steps will save lives. Rite-Aid has been a major sponsor of the HWMF and programs that have been developed to help provide diagnostic testing. It is our hope that we can continue to build these programs, in addition to supporting the critical research that is on-going at the Mayo Clinic led by Dr. Michael J. Ackerman, M.D., PhD. Applications for obtaining financial assistance and pointing one to the diagnostic testing services can be found on our web-site.

We have also added a section on the web-site describing some of the testimonials we have received in regard to the information about CPVT and the help that that our efforts have achieved. We also hope to support Dr. Ackerman in his many speaking engagements around the country to talk about CPVT and associated heart arrhythmia developments with diagnosis and treatments.

We look forward to the 6th annual ‘Smile With Me’ 5K Run next May and hope that you will continue your support. Thank you.

Sincerely Yours,

Bruce Wernke and the HWMF Board

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Lace up your running shoes, and take a run over to Strongsville, Ohio this May for the 5th Annual 5k Run and One Mile Family Walk, sponsored by The Hannah Wernke Memorial Foundation. All proceeds benefit heart arrhythmia research & community scholarships, and you don’t have to be a super-athlete to participate. You can walk at your own leisure, or sprint to the head of the pack and grab the first place trophy. Either way, we’re sure you’ll have a great time and support a wonderful cause. Register online at Hermes Sports & Events. See you at the race!

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Help us Stop CPVT!

by admin on February 4, 2010

Our annual 5K Run and 1 Mile Family Walk was created to help raise funds to support our mission, but you don’t have to wait until May to help. You can donate any time by visiting the official Hannah Wernke Memorial Foundation donations page.

We use PayPal which is the industry standard for online transactions, and no registration is required.

The Hannah Wernke Memorial Foundation is a non-profit 501(c)(3) organization, and your contributions are tax deductible.

Thank you very much for your kind donations!

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