Suspension of Active Fundraising Activities

by admin on March 13, 2013

Dear Friends,

Thank you for all of your previous support of the Hannah Wernke Memorial Foundation. For a variety of reasons, including job transfers and relocations of some of our board members, we are suspending our active fundraising activities. We will not be holding the “Smile With Me! 5K Run and 1 Mile Family Walk” this year. However, we will continue to accept passive donations to support research for the deadly heart arrhythmia, CPVT.

A lot of good work continues to be done and progress continues to be made with CPVT research at the Mayo Clinic and they are very appreciative of the support. The Hannah Wernke Memorial Foundation is honored to have been awarded a place in the Mayo Clinic’s Hall of Major Benefactors. This status could never have been achieved without the help and support of many, including you!

We will continue to support CPVT research at the Mayo Clinic, as donations allow. We will also continue to award community scholarships to students majoring in Education, through our scholarship program.

A few highlights from our fundraising efforts over the past 7 years include:

  • Raised over $300,000
  • Over $210,000 in CPVT research donations to the Mayo Clinic Sudden Death Genomics laboratory
  • Established a Community Scholarship fund and awarded 12 scholarships to date
  • Grants from The Rite Aid Foundation allowing for genetic testing fee assistance for 20 individuals
  • Expenses kept to about 2.5% – mostly only IRS filings and mailings

All donations have been used to support 1) Heart Arrhythmia Research and Awareness 2) Genetic Testing for Families in need and 3) community scholarships.

Please continue to check our this site for updates and information.

Donations can be made through our Donations Page.

Thanks so much for all you enable us to do!

Sincerely,

The Hannah Wernke Memorial Foundation Board

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C.A.R.E Cardiac Arrhythmias Support Community

by admin on February 5, 2011

CARE

The Cardiac Arrhythmias Research and Education Foundation maintains a Community Support page where visitors can share their stories and struggles with acquired and heritable heart rhythm disorders.

Both sites provide necessary and helpful information for individuals and families suffering from cardiac arrhythmias such as CPVT, Arrhythmogenic Right Ventricular Dysplasia, Long QT Syndrome, Hypertrophic Cardiomyopathy, and Wolff-Parkinson-White (WPW) Syndrome.

Part of our mission at The Hannah Wernke Memorial Foundation is to help build awareness of hearth arrhythmia disorders, and we’ll continue to provide helpful links on our site to help spread the word.

You can subscribe to our blog via email or RSS by clicking the appropriate link in the right-hand margin. Thank you!

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Newsletter – October 2010

by admin on February 4, 2011

The 5th Annual ‘Smile With Me! 5K Run and 1 Mile Family Walk’ was held on Saturday, May 15th, 2010 . The fundraiser event surpassed the 400 participant mark. Thanks to our sponsors, volunteers, and participants for making this another great year, and in remembering Hannah by supporting CPVT heart arrhythmia research – it’s causes, advancements in diagnostic testing, awareness, and helping treat cases before they become a tragic loss.

We had approximately 425 participants in this year’s walk and run, and generated over $40,000 from donations, corporate sponsorships, and net race proceeds. The ‘Smile With Me’ continues to be a first class event due to the tremendous support and services of our many volunteers, the City of Strongsville police and fire departments, the Walter F. Ehrnfelt Recreation Center staff, and our Race Sponsors and donors of the many product giveaways and awards.

The 6th “Smile With Me” 5K Run and 1 Mile Family Walk is scheduled for 5/14/11. The HWMF Board is already working on needs for next year’s event. We look forward to surpassing the next milestone of 500 participants. If you have any suggestions please let us know (you can drop us a line from our contact page)

The HWMF is continuing it’s reach to families that have needs for CPVT testing where it is suspected that CPVT is present. Current diagnostic testing is very expensive, however, it is hoped that these steps will save lives. Rite-Aid has been a major sponsor of the HWMF and programs that have been developed to help provide diagnostic testing. It is our hope that we can continue to build these programs, in addition to supporting the critical research that is on-going at the Mayo Clinic led by Dr. Michael J. Ackerman, M.D., PhD. Applications for obtaining financial assistance and pointing one to the diagnostic testing services can be found on our web-site.

We have also added a section on the web-site describing some of the testimonials we have received in regard to the information about CPVT and the help that that our efforts have achieved. We also hope to support Dr. Ackerman in his many speaking engagements around the country to talk about CPVT and associated heart arrhythmia developments with diagnosis and treatments.

Sincerely Yours,

Bruce Wernke and the HWMF Board

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