About CPVT

Catecholaminergic Polymorphic Ventricular Tachycardia, or CPVT, is a genetic disorder of the heart’s electrical system. CPVT is a highly lethal heart arrhythmia that typically emerges during physical exertion, emotional stress, or excitement. There is no known diagnostic test for CPVT beyond a “chance” ECG reading or genetic testing, and the first indication of CPVT is often exercise induced fainting or seizures.

When death claims an infant, it is called sudden infant death syndrome (SIDS) and when the death claims a child, it is called sudden unexplained death in childhood (SUDC). One such genetic heart rhythm syndrome is a condition known as “Catecholaminergic Polymorphic Ventricular Tachycardia” or “CPVT”. In many respects, CPVT is the perfect killer, the heart is structurally normal and there are no clues to be found with a screening electrocardiogram (ECG).

Research labs at the Mayo Clinic are working to identify the genetic causes behind CPVT and to uncovering methods to defuse or protect patients from this ticking time bomb.

The Hannah Wernke Memorial Foundation’s mission is threefold: 1) to raise funds for CPVT heart arrhythmia research through The Mayo Clinic, 2) to help build awareness of hearth arrhythmia disorders such as CPVT, and 3) to fund college scholorships for graduating High School Seniors from Strongsville, Ohio, who plan to major in education.

March 5, 2007 CPVT Research Interview with Dr. Michael Ackerman




For more information, please visit these sites:

Wikipedia CPVT Information Page

CPVT Info Sheet – New Zealand

Mayo Clinic – Perfect Electrical Assassin

SADS

C.A.R.E Foundation – www.LongQT.org

C.A.R.E. Cardiac Arrhythmias Support Community

Epilepsy Foundation Sudden Arrhythmias – what causes SADS?

crt.org – Cardiac Risk in the Young

cpvt.org – UK Ashley Jolly Sudden Adult Death Trust

Orpha.net